Comments on: How did we get here? http://thespecialparent.com/2009/01/08/how-did-we-get-here/ Special People Parenting Special Kids Thu, 01 Apr 2010 20:55:18 +0000 http://wordpress.org/?v=2.8 hourly 1 By: Kyron http://thespecialparent.com/2009/01/08/how-did-we-get-here/comment-page-1/#comment-240 Kyron Sun, 25 Jan 2009 21:43:08 +0000 http://thespecialparent.com/?p=157#comment-240 Randy, Thanks so much - that was actually great advise since I've been looking for a better way of cleaning than alcohol swabs that were supplied because they sting her and she hates HATES the smell. The baby shampoo is brilliance and I just wish I had thought of it! :) I really appreciate your visit and taking the time to post that! ~Kyron Randy,

Thanks so much – that was actually great advise since I’ve been looking for a better way of cleaning than alcohol swabs that were supplied because they sting her and she hates HATES the smell. The baby shampoo is brilliance and I just wish I had thought of it! :) I really appreciate your visit and taking the time to post that!

~Kyron

]]> By: Randy R http://thespecialparent.com/2009/01/08/how-did-we-get-here/comment-page-1/#comment-239 Randy R Thu, 15 Jan 2009 01:45:01 +0000 http://thespecialparent.com/?p=157#comment-239 Kyron, This my first visit to this website and I read your post about your daughter's G-tube. I have twin boys, 3 years old, that both have G-tubes since leaving the NICU. Dylan just got his out a few months ago and Ryan still has his in. After three years we have gotten use to them and have a sense of security knowing we can get water and food in them when absolutley necessary. Even now, with Dylan's out, we are constantly worried if he is getting enough water and calories, while we know Ryan is. My advise is; Get a spare G-tube from Insurance and a tube of KY gel and keep in your diaper bag or purse incase her's comes out or breaks. We clean the site every night with baby shampoo and q-tips. I wish I could think of more but I have to go... Best of luck, Randy Kyron,

This my first visit to this website and I read your post about your daughter’s G-tube. I have twin boys, 3 years old, that both have G-tubes since leaving the NICU. Dylan just got his out a few months ago and Ryan still has his in. After three years we have gotten use to them and have a sense of security knowing we can get water and food in them when absolutley necessary. Even now, with Dylan’s out, we are constantly worried if he is getting enough water and calories, while we know Ryan is.

My advise is; Get a spare G-tube from Insurance and a tube of KY gel and keep in your diaper bag or purse incase her’s comes out or breaks. We clean the site every night with baby shampoo and q-tips.

I wish I could think of more but I have to go…

Best of luck,

Randy

]]> By: Kyron http://thespecialparent.com/2009/01/08/how-did-we-get-here/comment-page-1/#comment-238 Kyron Fri, 09 Jan 2009 13:57:18 +0000 http://thespecialparent.com/?p=157#comment-238 Thanks so much to you both. We are leaving in a few to go up to the hospital. Your well wishes mean so much!! Good thoughts and prayers are very much appreciated :) Thanks so much to you both. We are leaving in a few to go up to the hospital. Your well wishes mean so much!! Good thoughts and prayers are very much appreciated :)

]]> By: Stacey http://thespecialparent.com/2009/01/08/how-did-we-get-here/comment-page-1/#comment-237 Stacey Fri, 09 Jan 2009 01:18:40 +0000 http://thespecialparent.com/?p=157#comment-237 I think that you as Katherine's mother know her best-- The kids and families I know who have had G-tubes--were small -- but I will email a link of this to them.-- connection seems to help? I send prayers your way! I think that you as Katherine’s mother know her best–

The kids and families I know who have had G-tubes–were small — but I will email a link of this to them.–

connection seems to help?

I send prayers your way!

]]> By: Deana http://thespecialparent.com/2009/01/08/how-did-we-get-here/comment-page-1/#comment-236 Deana Fri, 09 Jan 2009 00:09:39 +0000 http://thespecialparent.com/?p=157#comment-236 I'm sorry to hear that Katherine is still having trouble. We are still pretty new to the game of g-tube's ourselves, having just had Max's placed in August. It was one of the most difficult decisions to make, yet one of those ones where I have sat back and kicked myself wondering what took so long!? It's never easy to have our kids go in for a procedure/surgery. I'll be thinking of you tomorrow. I’m sorry to hear that Katherine is still having trouble. We are still pretty new to the game of g-tube’s ourselves, having just had Max’s placed in August. It was one of the most difficult decisions to make, yet one of those ones where I have sat back and kicked myself wondering what took so long!?

It’s never easy to have our kids go in for a procedure/surgery. I’ll be thinking of you tomorrow.

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