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National Healthcare Reform and individuals with special needs

May 12, 2009 Kyron No Comments

I was pleased to receive notice about a speech an amazing woman, Julie Beckett, gave recently to a group in Madison, WI (I am so going to have to get up there someday with the excuse of visiting my brother) Julie is mother to Katie, who contracted viral encephalitis when she was 6 months old. …

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Be Part of the Breakthrough for Down Syndrome Research

May 7, 2009 Kyron 1 Comment

This article was submitted to me and unfortunately I have been sidetracked. That seems to happen alot these days. Life has a way of doing that to so many of us.  While this article talks specifically about Down Syndrome research, there is room to be concerned about funding for many issues regarding special needs children. …

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I wish I could come up with a title

March 26, 2009 Kyron No Comments

…that would be as wonderful as the article I have to share with you today. I feel honored to “know” the woman who expressed everything I thought when I heard about this gaffe that President Obama made. Honestly, right now I couldn’t have begun to do it the justice Johanna has. I feel blessed to …

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Why Doesn’t She Just…?

January 25, 2009 Kyron 3 Comments

I was sent this by a dear friend of this blog and just HAD to share – because I’ve been on BOTH sides of this and hope that it makes all of us take a second before we too are the pointers….. Why Doesn’t She Just…? Written by Michelle See her? That mom over there? …

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American Idol 2009

January 13, 2009 Kyron 1 Comment

Oh you know it – I’m in heaven – It’s American Idol time again and I too can revel in the sublime to the ridiculous that they have in contestants. It’s a new season and they are starting in Phoenix. I haven’t decided on this new judge, Kara. Right now she seems like the “sane” …

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Katherine Update…

January 13, 2009 Kyron 2 Comments

Just felt so wonderful about how many of you either posted or emailed me about the G-Tube and I really appreciate all the kind words of hope and support. Katherine returned to school this morning – a bit sore but over all doing well. The feedings so far seem to be going pretty well. The …

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How did we get here?

January 8, 2009 Kyron 5 Comments

Katherine’s pancreatitis continues to have long reaching complications. Not only has her way of life had to change, not only has her look changed from the drastic weight loss she has encountered, but her look is about to take yet another turn. Her GI who I love is telling us that Katherine needs a G-Tube …

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