American Idol 2009

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Posted by Kyron | Posted in Inspiriation, Television | Posted on 13-01-2009

Oh you know it – I’m in heaven – It’s American Idol time again and I too can revel in the sublime to the ridiculous that they have in contestants. It’s a new season and they are starting in Phoenix. I haven’t decided on this new judge, Kara. Right now she seems like the “sane” Paula. As for contestants fairly unimpressive group and then you know it’s coming -  the “story” of the night. His name is Scott McIntyre and he’s a piano player and a singer with a real Coldplay sound who GRADUATED college at age 19 – oh did we mention he’s visually impaired??  He sang one of my favorite Billy Joel songs and I thought really brought his own sound to it.

Sometimes I worry about this however – did they pick Scott because he’s token disability boy or is he going to be given a fair shot? Only time will tell but he was truly talented. They said they gave out over 20 yellow tickets – if what they showed so far was any indicator of the talent pool this season Scott’s a top 10 entrant…..Obviously it’s early – but I’d love someone with a disability who has TRUE talent – which Scott clearly does – be able to go through and show to everyone how people can and should be judged on their merits not their challenges.  I look forward to seeing how this goes once we get to Hollywood! Go Scott!

Geraldo Rivera Tonight

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Posted by Kyron | Posted in News, Resources, Services, Television | Posted on 28-12-2008

Geraldo Rivera

on the issue of waivers… the Geraldo Rivera Live on the Fox News Channel is going to be doing a show on this tonight at 10pm eastern. Sorry for the short notice but hopefully you can catch it on DVR at the very least. It promises to be a good episode with people like Chris Burke (Life Goes On) and Timothy Shriver (Special Olympics) and Clay Aiken (American Idol) weighing in on this issue. For more information read Patricia Bauer’s excellent coverage on this episode.

What right to flight?

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Posted by Kyron | Posted in Advocacy, Autism, General, Television | Posted on 26-06-2008

As Good Morning America played in the background of our morning chaos yesterday, I quickly hit the record button on the TiVo. A parent and her toddler who is autistic were forced off an American Airlines flight. The mother took a train up to New York City to appear on the show.American Eagle Plane

I’ve watched it all now and let me tell you how much I hate these stories. Unless you’re there it’s always hard to judge in hindsight. However I still felt it was worth putting out there. I feel for this mother!! I have been on a plane with both my daughter who has some truly autistic behaviors (not that the paranoia from Katherine’s psychosis doesn’t make getting thru airport security bad enough). Quite frankly it became so difficult we stopped flying with her and at the time we made that decision she was flying once a month from Georgia to New Jersey to visit with her father. I know that this decision wound up working for us because her father came to recognize the real peril of her behaviors and the potential for real problems. Now he comes here instead.

I’ve also flown without my children but had other peoples children on the plane. Some of these children were without question disruptive, chaotic, trying. It was mayhem. Do I as a fellow passenger wish that the child would have been more quiet, more under control? Sure! Please – I don’t want 4-5 hours of my own child in chaos let alone one I don’t know. Reality though?? Please. The reality is that with airlines today I’d like to act like some of those kids were. The difference is my decades of additional experience and my brain’s ability to exhibit impulse control. Now take away the decades of experience and the fact that even the most “normal” child has impulse control issues because their brain is not fully formed.

What is it these days where adults are so self-absorbed that they can’t handle some chaos or turn it around and revel in a child who is only acting out like we wish we could? Where is a helping hand to assist a mom who has a child who’s boisterous or fidgety because you have all been waiting on that plane or in the terminal for what seems like forever?

I watched the mom – Janice Farrell calm her son on TV. It’s fairly obvious that she has the ability to control the child given the right environment. Certainly the one described by Ms. Farrell (which you can see by clicking here) was anything but the right environment for a child with any special needs, let alone autism. I am guessing that Ms. Farrell could have done as much to calm her son on this flight had she been met by understanding rather than judgement. The airline – American – released a statement saying

“The child had been crying and screaming uncontrollably, to the point where the child’s well being was in question,” American Airlines, the parent company of American Eagle, said in a statement. “Though, ultimately, the parent’s violation of FAA regulations was the cause for removal, both situations contributed to an uncomfortable and potentially unsafe atmosphere for our passengers and crew.”

Ms. Farrell says that she did comply and on that issue all I can say is who knows? I know she says she allowed them to stow the bag. Let me put on the record that I personally don’t believe for a minute that this was the issue. I’m guessing that like many others, that flight attendant wasn’t in the mood to deal with a challenging child. I am guessing that to top the poor attitude that the flight attendant exacerbated an already difficult situation by her lack of understanding how her tugging at the seatbelt and tone of voice were only adding fuel to the fire. I’m guessing that had she been given the opportunity she could have calmed her son just as she did on live tv…..without a bunch of nasty, judgmental people harping on her and her small child. No toddler will do well under those circumstances let alone one that has problems interpreting social signals and sensory input!

The reality is that the airline does need to make sure that it’s safe for everyone to travel however it just seems to me that these things just didn’t happen before 9/11 and now I seem to see them all over the place. Everyone had a little more patience because the whole airport thing was a whole lot less grueling. The reality is at worst I would guess that this child posed a nuisance and a headache factor for some employees and passengers who were either basically intolerant or in a particularly bad mood that day. I get needing to keep people safe from terrorists, not from terrorized 2 year olds. And face it – that child was terrorized. Even if I assume that Ms. Farrell’s view is biased – without question the manner in which we are now required to travel with increased security it torturous for even the most seasoned traveler.

Seems to me that human decency requires some patience with the youngest of us. We need to go back to viewing our world as a larger family of whom we need to be supportive and caring of. Let’s face it….turning the plane around, going back to the gate took as much time as allowing this mother the space to help her child calm down. I don’t know why this woman and her child chose to travel via air. I don’t even care. It seems that disabilities have to be accommodated – and American Airlines blew it on this call not once but twice. Their first opportunity was blown by the flight crew – pilot included. The second was from American corporate who decided than rather to suggest that a policy of Ancora Imparo (thank you Dr. Rick Rader of Exceptional Parent magazine for introducing me to that term) which means ‘I am still learning’ in which maybe they took some accountability for their employees behavior and remembered we all are continually learning and we need to allow new experiences to give us growth rather than duck behind the blame game. What an opportunity they missed by not acknowledging they had something they could learn from this rather than casting blame away from them and their employees.

Dancing with the Stars Junior Edition

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Posted by Kyron | Posted in Television | Posted on 22-04-2008

Ok did you see that cute 13 year old Brandon and Brittany?? Oh my goodness they were amazing and Brittany is deaf in one ear. It’s the Marlee effect (ok obviously not but hey!) in the next generation. I was so blown away by their performance I had to share.

I do love this little Juniors competition. The kids are so talented and they are so cute ya just wanna pinch their cheeks!! Yay!! Brandon and Brittany advance to the next round in the Junior’s competition!!

TiVo® Alert – The Miss USA Pageant

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Posted by Kyron | Posted in Disability Groups, Inspiriation, Television | Posted on 11-04-2008

I am SURE you are saying are you kidding me with the Miss USA Pageant as a TiVo alert! I however think all of you with little girls may be very happy to have your daughter see MissMiss Iowa in the Miss USA 2008 contest Iowa – Abbey Nicole Curran.  She’s a beautiful, talented, intelligent, self-possessed, young lady who is competing for the Miss USA title tonight. Why am I so interested in Miss Iowa when I am a Georgia resident and  Jersey born well because Miss Iowa has cerebral palsy.Ms. Curran says she wants the judges to know that she is living her dream competing in the Miss USA pageant. She says she also feels she’s not doing it just for herself however but for all people with disabilities hopefully teaching others it’s ok to take risks and that you never know until you try.It’s being carried on NBC tonight so check your local listings. GO ABBEY! 

TiVo® Alert Autism Every Day on Sundance Channel

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Posted by Kyron | Posted in Autism, Television | Posted on 31-03-2008

Autism Every Day on Sundance Channel:

The Sundance Channel will present the U.S. television premiere of Lauren Thierry’s documentary Autism Every Day on Wednesday, April 2 at 8 p.m. ET (which is World Autism Awareness Day). The film documents the day in the lives of eight families struggling to raise children with autism.

I hope that many people take the opportunity to see this

The Sunday Paper for March 30, 2008…

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Posted by Kyron | Posted in Advocacy, Autism, Diagnoses, General, Sunday Paper, Television | Posted on 30-03-2008

…and a cup of coffee

Every Sunday I hope to offer you my version of the Sunday paper with articles from theCoffee and the Sunday Paper past week or two, relevant or uplifitng (or both), on various issues within the special needs community.


Students with needs discover their talents

Program in Mamaroneck, NY helps teens with a variety of special needs plan for their futures to ensure they have the basic life skills they will need after leaving school

Students raising money to help Gilbert teacher
Students are fundraising to help special education teacher Juan Reyes offset the approximately $600-700 annually he goes out of pocket to provide for his students with special needs.

Synagogue to hold service for special needs children

Syangogue holds service for special needs children and their family. Serving West San Fernando and Conejo valleys

Disability Advocates want name change for Missouri state agency

Advocates lobbied at the Missouri state capital to have the words mental retardation dropped from the state agency name

US Airways helps special needs dogs

US Airways is helping to train service dogs with their puppies in flight program

Family shocked by MD’s speed over 11 year old
Muscular Dystrophy’s impact on an 11 year old boy and his family

Three documentaries put faces on autism

Realistic portrayals of autism hit the big screen with Autism Every Day, Autism: The Musical and Her name is Sabine

Little Horizons Produces Early Childhood Education DVDs for special needs children

Fun with the ABC’s allows special needs children and able bodied children to have fun side by side while learning their ABC’s

The Sunday Paper for March 23, 2008…

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Posted by Kyron | Posted in Advocacy, Articles, Disability Groups, Education, Inspiriation, Sunday Paper, Television | Posted on 23-03-2008

…and a cup of coffee

Every Sunday I hope to offer you my version of the Sunday paper with articles from theCoffee and the Sunday Paper past week or two, relevant or uplifitng (or both), on various issues within the special needs community.


Trip planned to protest cuts to special needs program
An Alabama woman is planning a trip to the state capital on Wednesday to protest proposed cuts to the state’s Early Intervention Program.

Special needs music box artists share their gifts
Art Access is a place for people with differing abilities to come together and grow creatively by learning about art and each other.

Disability no barrier for Gaither Athlete

High School sophomore Casey Garber says he’s not trying to prove anything by competing in track and field just because he has cerebral palsy.

Program targets kids with special needs
Pennsylvania Parks and Recreation program has started two programs for children with special needs and their parents

Bid to turn Castlehyde Hotel into care centre for special needs kids
Bid to take a hotel closed in 2005 and turn it into a day care center for children with special needs.

Advocate brings disability awareness to students
Kokomo students learn about difficulties people with disabilities face in everyday life in an event that Russ Ragland has brought to the High School for the past eight years.

Prime Time Disability
While its becoming more common to see people with disabilities on primetime television, unfortunately it hasn’t broken it’s habit of using able-bodied actors to fill the roles.

TiVo® Alert Extreme Makeover Home Edition – The Gaudet family

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Posted by Kyron | Posted in Inspiriation, Services, Television | Posted on 23-03-2008

Ty Pennington | ABC | Extreme Makeover Home Edition

A nice way to end Easter and what has turned into World Down Syndrome Weekend Extreme Makeover joins our celebration when Ty and the crew rebuild a home damaged by Hurricane Katrina and help a family whose son with Down Syndrome has inspired them to help adults with special needs.

Can’t wait to tune in – see ya there Ty!

What Marlee Matlin taught me by dancing

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Posted by Kyron | Posted in Deaf/Hearing Impaired, Education, Inspiriation, News, Television | Posted on 19-03-2008

I am something of a tv addict. One of the shows I love is Dancing with the Stars. Part of what draws me to it probably has something to do with the fact that for some reason my husband is willing to watch it with me. But I do get some Marlee Matlin and Fabian Sanchez | Dancing with the Starssatisfaction from watching people stretch outside their comfort zone because lets face it, most people do not have a comfort level with ballroom dancing.

Now we’ve had soap opera, movie and other tv actors and actresses, singers from 70’s music to country to R&B, olympic athletes, football players, comedians, broadway stars, race car drivers and on and on…..a truly diverse group of individuals. Differences aside, there is one thing they all had in common. They could hear the music.

This season Marlee Matlin, youngest woman to win an academy award in the best actress category and more recently seen on The West Wing, The L-Word, Nip/Tuck and Desperate Housewives is trying out her dancing shoes which is all the more amazing given the fact that Marlee is profoundly deaf. I watched last night in sheer astonishment and joy. Look at that girl dance!!! I am certain she feels the rhythm to some extent but she’s really at the mercy of her partner Fabian Sanchez. He must need to give her certain cues to make sure it comes together and there is no denying whatever they are doing is working.

This will be my example to Katherine of never saying “I can’t do that”. Sometimes Katherine is quick to say she doesn’t have the capability to do something.  I feel badly about it because maybe I’ve protected her too much. Yet I try with all my might to open her world to as many possibilities without telling her she can go to Harvard and be a neurosurgeon.

The point is this though. I doubt anyone told Marlee Matlin as a young girl that she could dance. Competition ballroom dancing just isn’t one of the things you typically do if you are profoundly deaf and yet – why the heck not??  I doubt anybody said “Oh honey absolutely you’ll be an academy award actress!”  What I love about Marlee Matlin most is that Marlee does what Marlee wants – not necessarily what she “should”.

What a great role model she is for her 4 children. What a great role model she can be for our children. Proof that if it’s something you want to do by all means you should try. I don’t know about you but it’s a good lesson for me too. Sometimes maybe out of a desire to protect my ‘baby’ (yea my 16 year old baby) I don’t allow Katherine to stretch as far as I should or she could. I think maybe I will be going out to get some dancing shoes. Thank you Ms. Matlin for allowing your actions to remind me of what Eunice Kennedy Shriver said at the first opening ceremony for the Special Olympics:

In ancient Rome, the gladiators went into the arena with these words on their lips: ‘Let me win, but if I cannot win, let me be brave in the attempt…’

Let me too be brave in the attempt.