» Category Archives: Strategies

Where to start getting supports for your special needs child – Part 1

April 13, 2015 Kyron No Comments

I’ll start by saying that I know what a hard road this is. Finding resources for you and your child, and more importantly fighting them, will not be an easy task. There are a number of programs available, and there isn’t a one size fits all model, unfortunately. Services available vary, sometimes dramatically, depending on …

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Special Needs Camps

July 8, 2013 Kyron No Comments

It’s that time of year again and I’m appreciative that Susan Li of Find the Best was willing to write this article to share with all of us about finding camps for our special needs kids. Not only is it a great experience for the kids to engage with others in a fun atmosphere but …

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Tornados and Hurricanes and Flooding! OH MY!

May 26, 2011 Kyron No Comments
igor-and-karl

You can’t miss it if you turn on the TV. It seems natural disasters are everywhere these days. From Earthquakes to epic flooding to tornados to hurricanes, there are only a few disasters that actually give you time to plan. If the catastrophic disasters of Tuscaloosa, Alabama or Joplin, Missouri have any redemptive value it …

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How did we get here?

January 8, 2009 Kyron 5 Comments

Katherine’s pancreatitis continues to have long reaching complications. Not only has her way of life had to change, not only has her look changed from the drastic weight loss she has encountered, but her look is about to take yet another turn. Her GI who I love is telling us that Katherine needs a G-Tube …

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Just In Case

July 21, 2008 Kyron 2 Comments

I just spent the past week at Childrens Healthcare of Atlanta – Egleston on 5West (big shoutout to the great staff there!!) Katherine developed what we believe to be acute (rather than chronic) pancreatitis. And if that wasn’t enough to cause this poor kid enough insane pain to break my heart she also had a …

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Summertime….it’s Summertime

June 3, 2008 Kyron 4 Comments

I can’t believe that time has gone by this quickly. Today is the second day of summer vacation in Georgia. I remember the good ole days when summer didn’t actually start until almost July…..of course then we didn’t start school until after Labor Day in September. But it’s just a different span until the kids …

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Caregiver Stress and 5 minutes

May 16, 2008 Kyron 4 Comments

As parents of special needs kids, no matter the age, many of us do far more care tasks than we might otherwise with a child of the same age. Whether it’s because your child has physical limitations or intellectual limitations it’s really immaterial. The reality is that sometimes the toll of this care sneaks up …

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